Less than 35 years ago, a diagnosis of Down syndrome was an indicator of a depressingly short life. In 1983, the average life expectancy for someone diagnosed with the chromosomal abnormality was just 25 years, according to the National Down Syndrome Society (NDSS). Today, the average is 60 years, according to NDSS, and children with Down syndrome are growing up to do things previous generations never thought they could do.
Down syndrome advocates say many parents who get the disconcerting news that their child has Down syndrome don't receive the most updated information from their physician, and sometimes they get no information.
Those parents' stories were a driving force behind the passage of last year's House Bill 3374, a measure that requires Texas physicians who diagnose a child with Down syndrome to provide parents with state-prepared, evidence-based information on the disorder.
Join attorney Suzanne Shepherd, health care chair of the Down Syndrome Association of Central Texas, and Adam Barta, MD, attending physician at Blackstock Family Health Center and clinical assistant professor at The University of Texas at Austin Dell Medical School, for a presentation about the new law. They also will cover the current range of medical and developmental outcomes of individuals with Down syndrome, status of Down syndrome cognition research, and current published research about prenatal cell-free DNA testing.
To register, visit the DSHS Grand Rounds website. If you have questions, email grandrounds[at]dshs[dot]state[dot]tx[dot]us.
For more information, read "Clearing Up the Myths" in the September issue of Texas Medicine.
Mark your calendars for these other Grand Rounds presentations:
Action, Oct. 3, 2016
Last Updated On
October 11, 2016