End-of-Life Care

Instructions for requesting articles.

Journal Articles

Wittink MN, et al. Stability of preferences for end-of-life treatment after 3 years of follow-up: the Johns Hopkins Precursors Study. Arch Intern Med. 2008 Oct 27;168(19):2125-30. Request full-text from Knowledge Center. Request from the  Knowledge Center .

Wright AA, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008 Oct 8;300(14):1665-73. Request from the  Knowledge Center .

Shipman C, et al. Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups. BMJ. 2008 Oct 1;337:a1720.  Access full-text article .

Back AL, et al. Communication about cancer near the end of life. Cancer. 2008 Oct 1;113(7 Suppl):1897-910. Request from the  Knowledge Center .

Pieracci FM, et al. Prospective analysis of life-sustaining therapy discussions in the surgical intensive care unit: a housestaff perspective. J Am Coll Surg. 2008 Oct;207(4):468-76. 

Racine E, et al. Media coverage of the persistent vegetative state and end-of-lifedecision-making. Neurology. 2008 Sep 23;71(13):1027-32. Request from the  Knowledge Center .

Dewar MA. Approaching the conversation of end-of-life treatment options. Am Fam Physician. 2008 Sep 1;78(5):562, 564.  Access full-text article .

McCarthy EP, et al. Advance care planning and health care preferences of community-dwelling elders:the Framingham Heart Study. J Gerontol A Biol Sci Med Sci. 2008 Sep;63(9):951-9.

Linton JM, Feudtner C. What accounts for differences or disparities in pediatric palliative andend-of-life care? A systematic review focusing on possible multilevel mechanisms. Pediatrics. 2008 Sep;122(3):574-82. Request from the  Knowledge Center .

Grunfeld E, Folkes A, Urquhart R. Do available questionnaires measure the communication factors that patients andfamilies consider important at end of life? J Clin Oncol. 2008 Aug 10;26(23):3874-8. Request from the  Knowledge Center .

Finlay E, Shreve S, Casarett D. Nationwide veterans affairs quality measure for cancer: the family assessment of treatment at end of life. J Clin Oncol. 2008 Aug 10;26(23):3838-44. Request from the  Knowledge Center .

Wasserman LS. Respectful death: a model for end-of-life care. Clin J Oncol Nurs. 2008 Aug;12(4):621-6.  Access full-text article .

Campbell ML. Treating distress at the end of life: the principle of double effect. AACN Adv Crit Care. 2008 Jul-Sep;19(3):340-4.

Harris FM, et al. Researching experiences of terminal cancer: a systematic review of methodologicalissues and approaches. Eur J Cancer Care (Engl). 2008 Jul;17(4):377-86.

Bryon E, et al. Decision-making about artificial feeding in end-of-life care: literature review. J Adv Nurs. 2008 Jul;63(1):2-14.

Coombs M, Long T. Managing a good death in critical care: can health policy help? Nurs Crit Care. 2008 Jul-Aug;13(4):208-14.

Harrington SE, Smith TJ. The role of chemotherapy at the end of life: "when is enough, enough?". JAMA. 2008 Jun 11;299(22):2667-78. Request from the  Knowledge Center .

Mack JW, et al. Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation ofa scale to assess acceptance and struggle with terminal illness. Cancer. 2008 Jun;112(11):2509-17. Request from the  Knowledge Center .

Braun UK, Kunik ME, Pham C. Treating depression in terminally ill patients can optimize their physicalcomfort at the end of life and provide them the opportunity to confront andprepare for death. Geriatrics. 2008 Jun;63(6):25-7. Access full-text article .

Cohen LL. Racial/ethnic disparities in hospice care: a systematic review. J Palliat Med. 2008 Jun;11(5):763-8. Access full-text article .

Payne SA, Turner JM. Research methodologies in palliative care: a bibliometric analysis. Palliat Med. 2008 Jun;22(4):336-42.  Access full-text article .

Devictor D, et al. Forgoing life-sustaining or death-prolonging therapy in the pediatric ICU. Pediatr Clin North Am. 2008 Jun;55(3):791-804, xiii.

Long T, Sque M, Addington-Hall J. What does a diagnosis of brain death mean to family members approached aboutorgan donation? A review of the literature. Prog Transplant. 2008 Jun;18(2):118-25; quiz 126.

Hales S, Zimmermann C, Rodin G. The quality of dying and death . Arch Intern Med. 2008 May 12;168(9):912-8. Request from the  Knowledge Center .

Lloyd-Williams M, Reeve J, Kissane D. Distress in palliative care patients: developing patient-centred approaches to clinical management. Eur J Cancer. 2008 May;44(8):1133-8.

Murray SA, Sheikh A. Palliative Care Beyond Cancer: Care for all at the end of life. BMJ. 2008 Apr 26;336(7650):958-9. Request from the  Knowledge Center .

Bernheim JL, et al. Development of palliative care and legalisation of euthanasia: antagonism orsynergy? BMJ. 2008 Apr 19;336(7649):864-7. Request from the  Knowledge Center .

Lanken PN, et al. ATS End-of-Life Care Task Force. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med. 2008 Apr 15;177(8):912-27.

Bakitas M, et al & ENABLE project team. Proxy perspectives regarding end-of-life care for persons with cancer. Cancer. 2008 Apr 15;112(8):1854-61. Request from the  Knowledge Center .

Glavan BJ, et al. Using the medical record to evaluate the quality of end-of-life care in theintensive care unit. Crit Care Med. 2008 Apr;36(4):1138-46. Request from the  Knowledge Center .

Wingate S, Wiegand DL. End-of-life care in the critical care unit for patients with heart failure. Crit Care Nurse. 2008 Apr;28(2):84-95; quiz 96.  Access full-text article .

Tuffrey-Wijne I, McEnhill L. Communication difficulties and intellectual disability in end-of-life care. Int J Palliat Nurs. 2008 Apr;14(4):189-94.

Quillin JM, Bodurtha JN, Smith TJ. Genetics assessment at the end of life: suggestions for implementation in clinic and future research. J Palliat Med. 2008 Apr;11(3):451-8.  Access full-text article .

Committee on Ethics. ACOG committee opinion Number 403 April 2008. End-of-life decision making. Obstet Gynecol. 2008 Apr;111(4):1021-7. Request from the  Knowledge Center .

McCabe ME, Hunt EA, Serwint JR. Pediatric residents' clinical and educational experiences with end-of-life care. Pediatrics. 2008 Apr;121(4):e731-7. Request from the  Knowledge Center .

Weckmann MT. The role of the family physician in the referral and management of hospicepatients. Am Fam Physician. 2008 Mar 15;77(6):807-12.  Access full-text article .

Shanawani H, Wenrich MD, Tonelli MR, Curtis JR. Meeting physicians' responsibilities in providing end-of-life care. Chest. 2008 Mar;133(3):775-86. Request from the  Knowledge Center .

Truog RD, et al & American Academy of Critical Care Medicine. Recommendations for end-of-life care in the intensive care unit: a consensusstatement by the American College [corrected] of Critical Care Medicine. Crit Care Med. 2008 Mar;36(3):953-63. Request from the  Knowledge Center .

Bülow HH, et al. The world's major religions' points of view on end-of-life decisions in the intensive care unit. Intensive Care Med. 2008 Mar;34(3):423-30.

Pantilat SZ, Isaac M. End-of-life care for the hospitalized patient. Med Clin North Am. 2008 Mar;92(2):349-70, viii-ix. Request from the  Knowledge Center .

Kuehn BM. Guideline for end-of-life care released. JAMA. 2008 Feb 27;299(8):888. Request from the  Knowledge Center .

Davies B, et al. Barriers to palliative care for children: perceptions of pediatric health careproviders. Pediatrics. 2008 Feb;121(2):282-8. Request from the  Knowledge Center .

Ngo-Metzger Q, et al. End-of-Life care: guidelines for patient-centered communication. Am Fam Physician. 2008 Jan 15;77(2):167-74.  Access full-text article .

Lorenz KA, et al. Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med. 2008 Jan 15;148(2):147-59.  Access full-text article .

Qaseem A, et al. Evidence-based interventions to improve the palliative care of pain, dyspnea, anddepression at the end of life: a clinical practice guideline from the American College of Physicians. Ann Intern Med. 2008 Jan 15;148(2):141-6.   Access full-text article .

[No authors listed] Summaries for patients. Treatment of seriously ill patients who are near the end of life: recommendations from the American College of Physicians. Ann Intern Med. 2008 Jan 15;148(2):I42.  Access full-text article .

Rose JH, et al. A coping and communication support intervention tailored to older patients diagnosed with late-stage cancer. Clin Interv Aging. 2008;3(1):77-95.

Sprung CL, et al & ETHICUS Study Group. Relieving suffering or intentionally hastening death: where do you draw the line? Crit Care Med. 2008 Jan;36(1):8-13. Request from the  Knowledge Center .

Dy SM, et al & RAND-Southern CaliforniaEvidence-Based Practice Center. A systematic review of satisfaction with care at the end of life. J Am Geriatr Soc. 2008 Jan;56(1):124-9. Request from the  Knowledge Center .

Radbruch L, et al & Research Steering Committee of the European Association for PalliativeCare (EAPC). Fatigue in palliative care patients -- an EAPC approach. Palliat Med. 2008 Jan;22(1):13-32.  Access full-text article .

Selman L, et al. Psychological, social and spiritual distress at the end of life in heart failure patients. Curr Opin Support Palliat Care. 2007 Dec;1(4):260-6.

Jordhoy MS, et al. Assessing physical functioning: a systematic review of quality of life measuresdeveloped for use in palliative care. Palliat Med. 2007 Dec;21(8):673-82.  Access full-text article .

Workman S. A communication model for encouraging optimal care at the end of life for hospitalized patients. QJM. 2007 Dec;100(12):791-7.

Luhrs CA, Penrod JD. End-of-life care pathways. Curr Opin Support Palliat Care. 2007 Oct;1(3):198-201.

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