Online Genetic Information for Physicians and Patients

    The Texas Medical Association Council on Scientific Affairs has approved these links as sources of information for physicians and their patients regarding genetic diseases. These sites are listed for educational purposes only and are not to take the place of medical advice for diagnosis or treatment of a genetic disorder. The TMA does not support or endorse any specific organization listed here.

    Clinical Information for Practicing Physicians

    • www.geneclinics.org
      This Web site includes an international directory of gene testing laboratories and genetic and prenatal diagnosis clinics. Also offers GeneReviews online publication. A one-time free registration is required . This site is funded by the National Institute of Health, Health Resources and Services Administration and the U.S. Department of Energy. 

    Patient Education and Support Groups

    • www.modimes.org
      The "Health Library" on the March of Dimes website has information on birth defects and support groups. 
    • www.rarediseases.org
      The National Organization for Rare Diseases website includes information on rare diseases via their "Rare Diseases Database" and links to foundations, agencies and support groups through their "Organizational Database." 
    • www.mostgene.org
      The Mountain States Genetics Network website offers a comprehensive "Directory of Online Genetic Support Groups." 

    Ethical, Legal, Social Issues

    • http://www.ama-assn.org/ama/pub/category/1799.html
      American Medical Association - Genetics and Molecular Medicine page provides information on current legislative issues and recent public policy regarding genetics. 
    • www.geneletter.org
      GeneLetter , is a free online magazine about genetic medicine published by GeneSage, a genetic services company founded by Paul Billings, MD PhD and Philip Reilly, MD, JD. Monthly updates on the latest developments in genetic medicine, "eAlerts," is free but requires a one-time registration. 
    • www.geneticalliance.org
      The Genetic Alliance website includes a "Genetic Issues" page with information regarding ethical, legal and social implications of genetic testing and genetic discrimination and legislative links. The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations. 

    Human Genome Project

    • www.ornl.gov/hgmis
      Oak Ridge National Laboratory website offers a primer on the Human Genome Project in addition to information on genetics research. 
    • www.er.doe.gov
      The U.S. Department of Energy Office of Science website offers in-depth information on the history and current progress of the Human Genome Project. 

    TMA Council on Scientific Affairs


    Comment on this (Must be logged in to comment)

    Add Comment

    Text Only 2000 character limit

    Looking for more?